Lucy McKay is a UK trained doctor and the CEO of Medics for Rare Disease. Lucy comes from a rare disease family and she grew up alongside a patient group that started life in her family home. After studying Human Genetics at The University of Nottingham she went on to study medicine at Barts and The London School of Medicine and Dentistry in 2010. During her medical studies she identified how medical education was contributing to the diagnostic odyssey and negative patient experiences.

Lucy’s role of CEO combines her unique personal experiences with her medical training in order to improve the lives of those living with rare diseases through medical education.

Lucy’s other roles include membership of the UK Government’s Department of Health and Social Care’s Rare Diseases Framework Forum and Steering Committee Member for Medscape’s Rare Diseases Learning Centre.